Living with GBS

February 8th, 2011 by sivodd

July of 2010 I was hospitalized and diagnosed with Guillain-Barre Syndrome. My immune system attacked my peripheral nervous system causing paralysis. It was devastating, I went form being totally independent to having to ask help for everything, from tying my shoes to taking a shower. I was like a child learning to walk. After months of physical therapy, I was well on my way to recovery.

Suddenly things took a turn for the worse. Last week I started feeling under the weather, I was getting weaker day by day. Finally it happened. I woke up Sunday thinking oh no, here we go again. Blurry vision and high blood pressure set in and I knew what was next. I couldn’t walk. I was taken to the hospital for a round of tests, nothing odd came up. It was a set back, I was so disappointed after all the progress I made and how far I had come. Now it’s back in for an IVIG treatment. Unfortunately with GBS there’s no rhyme or reason to it. The Doctor told me, there may be set backs on the road to recovery. (hopefully not too many)

Thankfully this morning I woke up feeling a bit better. Unfortunately I’m back to walking with a cane, but at least I’m walking. It’s been a little over a month since I needed it, It felt so good the first day I left the house without it. I was feeling so much stronger. I don’t know, maybe I started pushing myself too hard.  I can be such a knucklehead, I think I’m indestructible. I guess this was the kick in the ass to remind me I’m not.

I’m a FIGHTER and WILL get through this.

A man may fall many times in life, but is only a failure when he refuses to get up – Evil Knievel

Thanks for stopping by! Well wishes to you all and have a great day!

Lisa

Tags: ,

4 Responses to “Living with GBS”

  1. Stacy says:

    You aren't fighting this alone! Everyone who knows and loves you is fighting with you. We're keeping you in our thoughts.

  2. Sue says:

    You Know I got your back Darlin!!

  3. Lisa says:

    Thank you! I really appreciate that.

  4. Lisa says:

    Thank you! xoxo